ME/CFS is a complex illness that affects brain, body and immune function. It can cause pain, fatigue, a loss of cognitive functioning and a range of other symptoms. Some people with ME are unable to work full time or at all. Some are bedbound or housebound on their worst days and need around the clock care.
ME can be very difficult to diagnose as it is often misdiagnosed or confused with other diseases. The symptoms can appear suddenly or develop gradually. Unlike other diseases that are diagnosed with blood tests or scans, ME/CFS is diagnosed based on a person’s medical history and their pattern of symptoms. Other conditions that could cause similar symptoms must be ruled out before a diagnosis is made.
Many people with ME and their family and friends have to fight for recognition of the disease, access to treatment and support. This can be particularly challenging in schools and workplaces where there is a lack of awareness or understanding of ME/CFS. People may be regarded as lazy or faking their illness, which can lead to disbelief and discrimination from employers and others.
In this article we aim to help educate the public and health and social care professionals about ME/CFS, including its symptoms, how it impacts on a person’s life and what treatments can be offered. We will also look at some of the myths and prejudice that surround ME/CFS and offer advice to help overcome these obstacles.
There is no cure for ME/CFS. However, treatment can improve symptoms and help to manage the condition.
For example, medicines to help with sleep problems and pain management can be prescribed. Psychological therapies, such as cognitive behaviour therapy (CBT) and graded exercise therapy (GET), which were recommended in the past, are now being advised not to be used as they can worsen ME/CFS symptoms in some patients.
We have also listed some organisations that provide information, support and services to individuals living with ME/CFS in different countries, as well as some of the key research taking place globally into this illness. You can also contact Emerge Australia for ME/CFS information and support on 1800 865 321 or visit the Bridges & Pathways website to find resources in your state or territory.