If you’re asked to describe yourself, it’s not always easy to come up with the right words. The goal is to describe yourself as others see you, not as you’d like to be seen or as you think you should be. If you’re able to get some insight from friends and family, it can be even more helpful. Ask them to provide describing words that capture your strengths and the essence of who you are.
ME (myalgic encephalomyelitis)/CFS (chronic fatigue syndrome) is a complex chronic disease that causes extreme tiredness. It can cause pain, sleep disturbances, and difficulty regulating body temperature. Scientists do not understand what causes ME, but they believe genes and environment play a role in its development.
People who have ME/CFS often feel extremely tired – even after a good night’s sleep. They also may have a variety of other symptoms such as unrefreshing or interrupted sleep, pain, cognitive problems, and difficulties with balance and coordination. They can be very ill and, in severe cases, unable to work or to care for themselves.
Symptoms of ME/CFS can present differently in different people, but most people have the following symptoms:
ME/CFS is not well-understood and there is no diagnostic test. It is a complicated condition, but a diagnosis is important because it can help guide treatment and improve quality of life. It is also a good way to get the support you need.
It can take months or years to receive a proper diagnosis. The CDC recommends that you start with your primary care doctor, and then go to a specialist, if needed. The ME Association is here to help with your journey.
We offer information, support and practical advice for people living with ME/CFS. We work to meet the needs of people affected by ME/CFS, their families and their carers in Massachusetts and beyond.
Myalgic Encephalomyelitis (ME) and CFS (Chronic Fatigue Syndrome) are two separate illnesses with a shared history and overlapping main symptoms. The World Health Organisation recognises both ME and CFS separately, but healthcare systems, healthcare professionals and charities use the combined term ME/CFS.
ME/CFS is a very serious illness, affecting millions of people worldwide. It is not well-understood, and there is no known cure. However, there are treatments and coping strategies that can greatly improve your quality of life.
A personalized approach to managing ME/CFS is required because the disease manifests differently in each person. It is very important to communicate accurately with your healthcare providers, documenting your symptoms thoroughly.
ME/CFS is a chronic condition and its symptoms can fluctuate over time. The illness can be triggered by many things, including infections, surgery, a major hormonal shift (such as pregnancy or menopause), stress, or physical or emotional trauma. Some people experience ME after a severe viral infection, while other people have a gradual onset of the illness. Regardless of how ME/CFS begins, it can have devastating consequences: on average, people with ME score as more disabled on quality-of-life surveys than do people with conditions such as multiple sclerosis and diabetes.