Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating illness characterized by persistent and relapsing extreme tiredness. It can be triggered by infection, usually viral but not always. There is no known cure for ME/CFS but some symptoms may be treated or managed. Many people with ME/CFS find it helps to keep a diary of their symptoms and share this with their GP or specialist.
Despite research efforts, the etiology of ME/CFS is not known. As a result, there is no objective diagnostic testing or pathophysiology to allow for precise diagnosis and treatment. Various perspectives on the etiology and pathophysiology of ME/CFS have led to changing case definitions and terminology over time, including ME/CFS, CFS, PEM and systemic exertion intolerance disease (SEID).
As a chronic condition, people with ME/CFS need to adapt their daily routine and pattern of activities to conserve energy resources, plan activities carefully to avoid exacerbating their symptoms and rest regularly to improve quality of sleep. This requires substantial lifestyle changes and can be challenging for family and friends as well as the person with ME/CFS who can often experience periods of good and bad health. People with ME/CFS also need to take time out of work and other social activities. This can have a significant impact on their income and confidence and can be distressing for both patients and their families. Despite these difficulties, it is possible to live with ME/CFS and the ME Association can provide information on entitlements to welfare benefits and support to help individuals access services and community groups to assist in overcoming some of the barriers to living with ME/CFS.
We are working to find a cure for ME/CFS so that precise diagnostic tools and life-changing treatments can be available as soon as possible. Support our global campaign for open, collaborative ME/CFS research by donating today. Your gift will help to accelerate the pace of discovery and get us closer to a future where ME/CFS, and other complex chronic diseases, are viewed as normal rather than as stigmatized illnesses.